Illinois Council on Developmental Disabilities
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The Illinois Council on Developmental Disabilities (ICDD) is dedicated to leading change in Illinois so that all people with developmental disabilities are able to exercise their rights to freedom and equal opportunity. The Council's work is carried out across the state through a network of advocates that educates the public on systems issues while encouraging change. ICDD continues to listen to the needs of individuals with developmental disabilities and their families by investing in new programs to improve the delivery of services and supports they deserve.

The Council focuses on a wide range of programs to help improve the opportunities people with developmental disabilities in our state are afforded, including education, employment, transportation, community living, and health care. Just as importantly, ICDD works to build the capabilities of individuals, families and communities, enabling each to become more self-sufficient through the Developmental Disabilities Assistance and Bill of Rights Act (the DD Act).

ICDD programs are developed in direct response to the concerns and ideas voiced by consumers, families, service providers, policy-makers and other professionals. By listening to these collective voices, the Council is taking the critical steps toward a dialogue for change in how Illinois regards and addresses its citizens with developmental disabilities.

Sheila T. Romano, Ed.D.
Executive Director






Click here to learn more about the Going Home campaign and how you can help spread the word about community living for people with developmental disabilities in Illinois.

ICDD Releases New Report

Illinois at the Tipping Point - Blueprint for Redesign in Illinois Update

In 2007, ICDD awarded a grant to the Human Services Research Institute (HSRI) to review the state’s system for delivering services to people with developmental disabilities.  The result was the Blueprint for System Redesign in Illinois.

Recently, ICDD asked HSRI to update the report and offer any new recommendations. The new report was released in May 2012. Click here to review the report Illinois At the Tipping Point - Blueprint for Redesign in Illinois Update.

Click here for a PowerPoint presentation about the the report.

Consumer Involvement Fund

ICDD provides grant funding for the Consumer Involvement Fund to the Arc of Illinois. For more information, click here.


What's New



Community Meetings

What Can We Do to Help People with Developmental Disabilities Get Their Own Individual Apartment?

Self-advocates and family members would often prefer additional housing options to choose from. In partnership with the Illinois Council on Developmental Disabilities, CSH and the Supportive Housing Provider Association will hold a series of community meetings across the state to talk about housing opportunities for adults with developmental disabilities. Meetings will focus on accessing supportive housing, or affordable housing with services that is integrated into the community where the tenant has his or her own home/apartment, as well as opportunities to work together to bring additional resources to your community to increase the supply of supportive housing for people with DD. All self-advocates, family members, community members, providers, and interested parties are invited and encouraged to attend. While registration is not required, please click here to RSVP if you plan to attend one of these meetings:

April 7
10:00am – 12:00pm
Rock Island
The Arc of Quad Cities
4016 9th Street, Rock Island

April 7
3:00pm – 5:00pm
The Arc of Winnebago, Boone & Ogle Counties
400 N. First Street, Rockford

April 9
1:00pm – 3:00pm
Joliet Area
301 Veterans Parkway, New Lenox

April 10
1:00pm – 3:00pm
Illinois Council on Developmental Disabilities
830 S. Spring Street, Springfield
April 11
1:00pm – 3:00pm
West Frankfort
The H Group
902 W. Main Street, West Frankfort, IL 62896
April 29
10:00am -12:00pm
East St. Louis
Lady of the Snow
442 S Demazenod Drive, Belleville

April 29
4pm – 6pm
1913 W. Townline Road, Peoria
April 30
1:00pm – 3:00pm
Bremer Conference Center Room 110
2000 E. Main Street, Danville



Click here for a copy of the report.

Click here for the report in Spanish.


A recommendation of the Employment and Economic Opportunity for Persons with Disabilities Task Force (established by legislation in 2009) is for Illinois to become an Employment First state.  Employment First simply means employment in the community would be the first and preferred option for individuals with disabilities receiving publicly funded services in Illinois.  To enact that recommendation, the Task Force held an invitation-only Summit on January 31, 2012 with ICDD support.  The summit included a cross-section of individuals with disabilities, family members, policymakers, disability professionals, and educators.

The Employment First Summit Report summarizes the findings from the summit, and lays out a series of recommendations for turning the vision of Employment First discusses at the summit into reality.  The Executive Summary contains a summary of the recommendations developed as a result of the summit.  The Full Report contains much greater detail on these recommendations, along with extensive documentation of the proceedings, links to a wide variety of resources within the text, and an extensive series of resources in the appendix.

A Better Bottom Line:  Employing People with Disabilities is an initiative of the National Governor’s Association and Illinois’ Governor’s Office has committed to the Taskforce to keep it and Illinois informed as this national initiative unfolds.   Change on many fronts will be needed to make Illinois an Employment First state.  Interest in seeing people with disabilities employed by our Governor is a welcome validation of what the Task Force envisions for Illinois.

Click here for a presentation from the Statewide Transition Conference on Employment First.

Illinois Emergency Management Agency Offers Emergency Preparedness Tips for People with Functional and Access Needs.
Click here for a copy of the press release with additional information.